Well so much for writing these weekly ….
In my last post, I had just returned from hospital from a series of Dihydroergotamine (DHE) injections. Although these didn’t “fix” the migraines, they did appear to have some form of positive effect. THe best description I can give is to say that it was like someone had put a large woolen blanket over the migraine. I knew it was still there and still pounding away, but I could now ignore it to a degree and get on with other things. I could remain calm and not want to scream and rant in frustration with my life. In short I could remain a rational human even in the grip of the worst migraine.
This was improvement!
Unfortunately, this seemed to wear off after two weeks when a couple of children shrieking in the chemist’s shop set off massive migraine pain and I was incapacitated for three or so days. This morning I woke up with aching wrists, which means I’ve been clenching my fists in my sleep due to the pain again.
So slowly the pain levels are rising back to where they were before the hospital visit.
But we have two good things out of this:
- We now have an idea of what family of drugs will affect the migraine. This may help the specialist target or refine the drug therapies.
- I have hope again. I lost it there for a while, but now I know there will be a cure and will sometime soon be able to get a job, go out for brunch, go out the movies, meet with friends and do all those things I love to do.
We see the specialist again on Wednesday.