I’ve been putting off writing this post.
As previously discussed, when I saw the consultant neurologist three weeks ago, I received Botox injections.
Mel: So when’s this Botox supposed to start working
Neurologist: In about a week
Mel: And how will I know it’s working
Neurologist: You wont have any migraines
It hasn’t worked. Or it hasn’t worked as advertised. I still wake up in pain every morning. If I just potter around for an hour or two it settles into something manageable and I can sometimes have a quiet day at home. The quiet day part has improved. As long as the pain is at manageable levels I can think and stitch simple patterns (as can seen by previous blog posts). I can read books again. I read the first of Suzanne Collins Hunger games trilogy last week in one day. I also made a pudding from scratch instead of from a packet mix. So definite improvements on the cognitive fronts.
However what has not improved is the sensitivity to the migraine triggers. The migraines are still being set off by the smallest incident. A person whistling as they walk past the house. An upset baby in a supermarket, an electronic warning device in a supermarket, (or as is happening outside right now) a neighbour mowing his lawn.
Once the migraines are set off the pain levels go up, the tolerance levels go way down, the cognitive levels and coping mechanisms desert me. I can’t think, I can’t articulate, I can’t do anything but inwardly scream and howl in pain and frustration and outwardly concentrate in remaining calm and polite until I flee whatever public situation it is.
And of course the rest of the day is fucked – and the following day or two too. It’s all quite depressing really.
Anyway I have a MRI booked on Wednesday to see if George the blob has grown or moved over the last 12 months. I had to fight the neurologist every inch of the way to schedule these tests so in some perverse way I am kinda hoping there is some change, while at the same time I am terrified there is change – pretty normal reaction I think there.
And probably also to Plan B for the migraines – three days in hospital for the next drug therapy.